N euro
M uscular
Disease
Support
Organization
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252-733-0799
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  1. VISION
    Improve the quality of life for those with a neuromuscular or neurological disease.
  2. MISSION
    * Provide access to services and support through advocacy and collaborative partnering. * Work to ensure anyone disabled with a neuromuscular or neurological disease has access to day to day needs. * Establish and age appropriate care facility that can be called home.
  3. VALUES
    Passionate Commitment, Honesty, Integrity, Excellent Service, Caring and Compassionate Support
Neuromuscular Diseases
 Neuromuscular disease/disorder is a broad term that encompasses many different syndromes and diseases that either directly or indirectly impairs the function of the skeletal muscles, the muscles that move the limbs and trunk. This can be through problems with the muscle structure itself (pathology) or problems found in the signal that is sent to the muscle, such as through a nerve. Individuals with neuromuscular disorders have difficulties with motion, mobility, performing activities of daily living, swallowing, memory and judgment, speech and language, balance and coordination. Neuromuscular diseases affect the function of muscles due to problems with the nerves and muscles in the body. The most common symptom of these diseases is muscle weakness.
In general, problems with central nervous control can cause either spasticity or some degree of paralysis (from both lower and upper motor neuron disorders, upper motor neuron conditions usually being associated with concurrent hyperreflexia), depending on the location and the nature of the problem.
Neuromuscular diseases usually attacks those from their 20's to early 50's. Should one find themselves unable to live at home their only current option is to move into a facility with a population of octogenarians. Not a welcome situation for folks with young minds.   We want to change this.
Neuromuscular Disease Support Organization, NMDSO
 
Established in 2016 the Neuromuscular Disease Support Organization, NMDSO, is a IRS 501 (c) (3) nonprofit organization that has been established in the State of North Carolina to assist individuals and families affected by a neuromuscular disease.
 
Located in Havelock NC, the NMDSO has teamed with Trinity Presbyterian Church also located in Havelock to provide services and support to those with a neuromuscular disease. Funding for our organization comes from individual donations and grants.
 
All the issues described above  can leave patients and their families faced with variety of challenges and financial strains. NMDSO has been established so that those afflicted can live with the confidence that they will have access to a support system as they battle the challenges of these diseases. Family support is also important and the NMDSO will support the family unit by providing support and services to help them endure the collateral impacts.
 
Our Goals include providing local residential assistance, sponsor support groups and host support group meetings and  establish Jenn's House an age appropriate facility that those with a neuromuscular disease can call home.
Please call our office if we can answer any questions, be of service
or if you would like to support our cause in any way. We believe
many hands makes for little work and with many hands and God's blessings we will work miracles. 252-733-0799
 
If you would like to make  donation please do so  via our
donate button or by sending a check to PO Box 1001 Havelock, NC
28532. Your donations are tax deductable.  It is our goal that 85-90% of funds received will go dircetly to supporting those in need.